Mark has been very busy these days, but doesn't seem to get around to the blog. So I'll up date it.
Mark had an EEG and an MRI on Monday the 14th. His EEG was normal and he is being weaned off his anti-seizure meds. He actually stayed up after 11pm the other night. This should help him with his excessive sleepiness. Many times he'll ask if he has dreamed something or if it actually happened. So far, all the things he has asked about have been real events. He feels like he's in a dream state. Hopefully this will help.
There was still too much blood (from the original bleed) in is brain to actually see the cavernous angioma with the MRI, but the blood is slowly being re-absorbed and the brain swelling is still going down. Until they can actually see the malformation, his diagnosis can't be confirmed. But the good news is that there has been no new bleeding and they haven't seen any more malformations (some individuals have hundreds).
Mark received the good news that he will probably be graduating from rehab by mid June. He's very excited by this.
Mark has been re-reading his most recent unfinished novel and hopes to begin working on it again soon.
I have begun doing some volunteer work for the Angioma Alliance, working on updating a mailing list of doctors all over the US. I would like to be able to donate the printing and postage for this mailing, so if anyone would like to help me out by making (even a very small one) a donation to the Angioma Alliance, please let them know it's for their upcoming mailing. http://www.angiomaalliance.org/donate.html
No comments:
Post a Comment
No more Anonymous comments, sorry.